tag:blogger.com,1999:blog-16472457.post3401397869288880954..comments2024-01-18T17:19:45.899-06:00Comments on The Hartley Hooligans: We've got answers!Gwenhttp://www.blogger.com/profile/10963513665015373305noreply@blogger.comBlogger15125tag:blogger.com,1999:blog-16472457.post-57591017160830388552019-10-27T19:00:13.286-05:002019-10-27T19:00:13.286-05:00Awww Lola's little voice was so damn cute. Loo...Awww Lola's little voice was so damn cute. Look back on it listen to it. Mama you did good please know that. Sweet little Lola rest easy baby ��❤️Michelehttps://www.blogger.com/profile/16054121836298909641noreply@blogger.comtag:blogger.com,1999:blog-16472457.post-38253575088040165572017-11-14T14:13:04.524-06:002017-11-14T14:13:04.524-06:00@AL -- We did. But we don't have any results ...@AL -- We did. But we don't have any results yet. We're not 100% sure they tested him for this gene? Since he is 18 now, he has to decide if he wants to know whether he's a carrier or not -- it's not OUR choice. He isn't in any position to make those decisions yet, and he is honestly too busy to care! He isn't trying to have a family at this time. Maybe someday down the road he will decide, but we'll likely keep that confidential, as it's his life & choices from here on out. In addition, he & his spouse would have to BOTH be carriers of this gene defect in order to have the same 1 in 4 chance Scott & I have in order to have an affected child. The chances of that are slim to none. Gwenhttps://www.blogger.com/profile/10963513665015373305noreply@blogger.comtag:blogger.com,1999:blog-16472457.post-49538799554732328362017-11-01T21:05:33.365-05:002017-11-01T21:05:33.365-05:00Have you tested Cal's blood yet?Have you tested Cal's blood yet?aludekehttps://www.blogger.com/profile/02776623233761686622noreply@blogger.comtag:blogger.com,1999:blog-16472457.post-16885873189600987472016-10-27T14:49:11.472-05:002016-10-27T14:49:11.472-05:00Oh my goodness, a diagnosis! I hope that you are a...Oh my goodness, a diagnosis! I hope that you are able to find comfort and community through this.MamaVhttps://www.blogger.com/profile/08592074818731602051noreply@blogger.comtag:blogger.com,1999:blog-16472457.post-76054414140584288602016-10-24T09:07:55.992-05:002016-10-24T09:07:55.992-05:00Happy 15th Birthday to Claire doll!!!
And so glad...Happy 15th Birthday to Claire doll!!!<br /><br />And so glad Lola is feeling better! Your daughters are such angels, and it's wonderful that you share your stories with us!<br /><br />Wishing your family peace, love & happiness,<br />RhondaRhonda Mhttps://www.blogger.com/profile/16406760790331043620noreply@blogger.comtag:blogger.com,1999:blog-16472457.post-20987073413539896682016-10-22T20:55:23.408-05:002016-10-22T20:55:23.408-05:00We aren't sure yet… The lab that collected his...We aren't sure yet… The lab that collected his blood is not the same lab that found the gene. So I'm hoping that they will be able to test his sample for it. He has a two out of three chance of being a carrier, so I guess we'll just wait and see! Gwenhttps://www.blogger.com/profile/10963513665015373305noreply@blogger.comtag:blogger.com,1999:blog-16472457.post-37043957858541317352016-10-22T20:54:26.341-05:002016-10-22T20:54:26.341-05:00The good news is that there isn't much known a...The good news is that there isn't much known about this condition, so it's not as scary as I thought it might be. I do worry about it being progressive, but I am praying that the girls continue to defy odds in that area as well! Big love!!!! Gwenhttps://www.blogger.com/profile/10963513665015373305noreply@blogger.comtag:blogger.com,1999:blog-16472457.post-20194244574010760442016-10-22T20:53:13.003-05:002016-10-22T20:53:13.003-05:00 Thank you for always being so sweet about our gir... Thank you for always being so sweet about our girls – it touches my heart deeply! And yes... that voice and those steps! Love my girlies!!!! Gwenhttps://www.blogger.com/profile/10963513665015373305noreply@blogger.comtag:blogger.com,1999:blog-16472457.post-482011286342048882016-10-22T20:52:31.525-05:002016-10-22T20:52:31.525-05:00We don't know yet about Cal... still waiting t...We don't know yet about Cal... still waiting to hear results!!! The lab that found the gene did not take his blood, but the other lab did. Hoping they will be able to test his blood sample to see if he has a carrier. He has a two out of three chance of being one! Gwenhttps://www.blogger.com/profile/10963513665015373305noreply@blogger.comtag:blogger.com,1999:blog-16472457.post-61394389856713889472016-10-22T20:51:30.267-05:002016-10-22T20:51:30.267-05:00Bok is negative. Genetic material cannot cross the...Bok is negative. Genetic material cannot cross the rubber-skin barrier. Whew! Lol We aren't sure about Cal yet --- the lab who found the gene didn't take his blood. The other lab has it though, so they may be able to test him. He has a 2/3 chance of being a carrier, but he would have to marry a carrier someday also. Seems rare that would happen, but look at Scott & I! Gwenhttps://www.blogger.com/profile/10963513665015373305noreply@blogger.comtag:blogger.com,1999:blog-16472457.post-65934899099138665762016-10-22T18:09:22.190-05:002016-10-22T18:09:22.190-05:00Was your son a carrier too? Was your son a carrier too? emmahttps://www.blogger.com/profile/10871288764443113258noreply@blogger.comtag:blogger.com,1999:blog-16472457.post-28285837474866139682016-10-22T17:04:20.297-05:002016-10-22T17:04:20.297-05:00Did you find out if Cal is a carrier? Hope you ha...Did you find out if Cal is a carrier? Hope you have a better time coming up. Congrats on the find. Was Bok tested?<br />Granny MooMoohttps://www.blogger.com/profile/13529850071654138056noreply@blogger.comtag:blogger.com,1999:blog-16472457.post-91782923900971903162016-10-22T11:31:50.753-05:002016-10-22T11:31:50.753-05:00Getting a Dx is such a catch-22. The elation of g...Getting a Dx is such a catch-22. The elation of getting answers, to the stark reality of what those answers bring, and unfortunately that the answers sometimes bring more questions. Keep on being such an amazing momma for your tribe.Chrissyhttps://www.blogger.com/profile/00295793283371850561noreply@blogger.comtag:blogger.com,1999:blog-16472457.post-30863620362769787062016-10-22T11:13:33.413-05:002016-10-22T11:13:33.413-05:00omg I listened to Lola three times, she has the sw...omg I listened to Lola three times, she has the sweetest voice. A little angle, let me tell you how amazed I am with both your girls and your son too. How proud Are you of these children, so adorable! Please keep those vids coming I love to see Claire take steps, Lola drinking and listening so intently just amazing beautiful<br />Anonymoushttps://www.blogger.com/profile/03322688965967006656noreply@blogger.comtag:blogger.com,1999:blog-16472457.post-20402254932291056342016-10-22T11:06:32.878-05:002016-10-22T11:06:32.878-05:00So glad you finally have a diagnosis!! I can't...So glad you finally have a diagnosis!! I can't imagine going through that for 15 years!!!! Wow!!! It's kinda like a blessing and a curse I suppose. Now you know what to research and know the expected prognosis. Much love to all of you Hooligans!!!! Did Cal test positive???Anonymoushttps://www.blogger.com/profile/02559744353552432537noreply@blogger.com