Showing posts with label interview. Show all posts
Showing posts with label interview. Show all posts

Thursday, April 13, 2017

Thankful Thursday

Today I am thankful that Natalie, Chris & Gerald took the time to share our family's story recently.  I have updated my blog's Media page with our most recent interviews, but I wanted to share them here as well.  My hope is that when people are educated about those with differences that they no longer will fear what they do not understand.  I hope that instead they will take the time to understand these differences & realize what importance these individuals have in our world & how much they have to offer.

  • We SO enjoyed meeting Christopher Ulmer from Special Books by Special Kids!  We are so grateful he took the time to fly from Florida to Kansas to come meet our girls & other kiddos in the area who also happen to have superpowers.  Click play below to watch our interview.  Also be sure to check out the SBSK Facebook page to see more amazing interviews!!!  Just so, so proud of Chris & all the important work he is doing. We love you, Chris!


  • I had the best visit with Gerald at Orange Socks!  Being a fellow parent of a child with special needs, he asked amazing questions & our time together on the phone flew by. You can hear the entire interview (I apologize for being a little long-winded... HA!) by visiting Orange Socks' Stories Page & clicking on "Gwen: Microcephaly, Asparagine Synthetase Deficiency or ASNS" link. While you are there, take the time to listen to the other interviews as well.  The strength & dedication of these parents straight up floors me.  I am proud to be in such good company.


Happy Thursday!


xo

Thursday, January 28, 2016

Thankful Thursday ~ BBC Radio

Yesterday I was interviewed by Julian Marshall of BBC Radio regarding microcephaly and the Zika virus, a mosquito-borne virus which is believed to be causing microcephaly in newborns whose mothers were infected by this virus while pregnant. I was honored & thankful to discuss our experience with microcephaly, and I hope that maybe, in some small way, my testimony can help new mothers whose babies were diagnosed with microcephaly to feel less alone & afraid. I certainly don't have all of the answers regarding this diagnosis, but I want to help set their minds at ease however I can.

It is sad to me that microcephaly is being vilified in the media due to Zika, and I hope that the general public realizes that though this diagnosis would not be something I would have chosen, I am NO LESS BLESSED by having two daughters with this condition than if they'd been born typical. I am just as proud of my girls as I am of our neurotypical son, Cal.

CLICK HERE to listen to my radio interview from yesterday!  As of now, I am being told it may only be active for another five days, though I hope to be able to download an mp3 of it at some point so I can share that here as well.

1.20.16 ~  Claire, Cal, & Lola celebrating the #DayOfAcceptance for #3ELove

xo
Related Posts Plugin for WordPress, Blogger...