I had to share pics and a video with all of you. Thank you SO MUCH for always seeing my girls' worth & value. You have no idea how much that means to all of us!
|"Bitch, I KNOW what's comin'. GET OFF OF MEEEEEEE!!!!"|
|"Son of a Nutcracker, that hurts!!!!!!"|
|"Oh wait. That's not so bad!"|
(Shortly after this, Claire fell asleep while Missy finished up!)
|"Ummmmm, tell me you are trying to help me do my best Funky Chicken move right now..."|
(The vein blew.)
|Trying a large vein in her lower leg...|
(The large, super-visible vein that was going to be "THE ANSWER" blew also.)
|Moving on to the groin where we were able to get a full tube+ from our wee little Lola!|
(Did I mention that it took like 5 minutes for it to slowwwwwwwwly trickle out?!)
|Amy playing hardcore rap videos about Bison for the girls off YouTube.|
|Claire gettin' it DONE in her new Rifton Gait Trainer! |
If you didn't see the video of her walking, click on this link to see my girl in action the FIRST TIME SHE GOT IN HER WALKER!!!!!!!! Talk about a blubbering mess of tears... it was THE MOST BEAUTIFUL THING I HAVE EVER WITNESSED IN MY WHOLE LIFE, aside from my kids' births & possibly that one raccoon video where he stands on his hind legs and uses his tiny human-like hands to rattle that rock against the sliding glass window repeatedly for like 2 minutes so he can get more food in his food bowl because he is a freakin' G, but that's beside the point.
MY GIRL IS WALKING, YOU GUYS!!!!!!!!!!!!!
|The long lost Kardashian sister, minus the gigantic ass, fantastic tan, and fake boobs. |
We shall call her Kola. Or maybe Kocket. HA!
|Unicorn crown from Nova Sky's Co.|
A huge thank you to Fatima Lee for sending this beautiful crown to our sweet, magical Unicorn Princess.
(And one to Claire, also!)
|The day of your birth... You were -- and still are -- so perfect, Lola.|
|This picture reduced me to tears immediately upon seeing it. I am 100% convinced that the siblings of individuals with special needs are some of the most incredible, considerate, compassionate, loving people on the planet. Cal has always been everything his little sisters needed. From the day both of them were born, he loved them unconditionally as only their big brother could. His ability to see past differences, accept people for who they are, and love with his whole heart has inspired me more than he could ever know. I could never have survived Lola's diagnosis without his wisdom. I am so honored to be called "Mom" by these three children of mine.|
|Possibly my favorite baby picture of Lola EVER! This is what she thought of therapy toys back in '07!|
|Notice Cal trying to help Lola blow out her candles?|
|All the cousins!|
|Post chicken pox.|
These pictures were hard to see. She was SO. THIN. Notice she is wearing the same dress as in the top picture above, but she literally swam in it. It is a 6-12 month size (thanks, Jessica!), and at age 7 above, she had lost so much weight due to being ill that she could barely wear that size. Heartbreaking to see where she was, but we are so grateful for the progress that has been made the past three years! Lola is seriously the strongest person I have ever known.
|Drop that knife, |
|Lola, Kerby, Cal & Claire ~ Prom 2016|
|Shall we call them LoLo & Clara? Lolita & Clarice? LeeLee & Mimi? Jury's still out...|
|Michele flat-out NAILED IT on Claire's doll. The darling crossed legs (left over right, baby!), her arm position, her beautiful ears, her most fabulous Halloween costume EVER... it was straight up PERFECTION. ALL OF IT!|
|And check out mini-Lola! CAN I GET A "BOK BOK" FROM EVERYONE WHO SAW FETA FIRST & FOREMOST?!?!??! I love you, Michele, for including our Bok. He'd want it that way. (Though he told me he is jealous he isn't as large, bodacious & colorful as mini-Feta... or should I say MAXI-Feta?!) I love how the doll's legs are tucked under her. I love her blue eyes. I love her birthmark, long, flowy hair and her low forehead. She is so pretty -- just like my girl!|
|Notice the little birthmark on her chin?|
That's what we love about you, Michele -- your attention to detail!!!
(Fake $5 to the first person who knows what movie that's from!)
|#FetaForever #BokNation #FetaForPresident #BokIsLife #InBokWeTrust #WWFD #ICouldGoOnAllDay|
|"I spy with my little eye the most beautiful girl on the planet! Wait, that's me!"|
|"Who wore it better?! If you guys say the Shorty with the bigger head, somebody's gonna be in a world of hurt."|