RESOURCES:
http://www.simulconsult.com/resources/head.html ~ Head Circumference Calculator (oh, and PLEASE let's not discuss how my girls' heads are -12 S.D. and -13 S. D. below the norm... DAMNNNNN.)
http://childrenwithmicro.org/ ~ Foundation for Children with Microcephaly (FCM)
http://www.hgu.mrc.ac.uk/people/a.jackson_lab_research_09/a.jackson_lab_forms09.html ~ Dr. Andrew Jackson, Medical & Developmental Genetics, studying microcephaly and dwarfism.
http://www.aph.org/cvi/index.html ~ Information about Cortical Visual Impairment (CVI)
http://www.brainandspinalcord.org/cerebral-palsy/types/spastic-quadriplegia.html ~ Information about Spastic Quadriplegia Cerebral Palsy
http://www.orpha.net/data/patho/GB/uk-MVMSG.pdf ~ Information about Microcephaly with Simplified Gyral patterns (MSG)
ALTERNATIVE TREATMENT/THERAPIES:
http://coxchirowichita.com/ ~ Applied Kinesiology, chiropractic care, and homeopathic remedies.
http://www.klausmeyernaturalmed.com/ ~ Naturopathic Medicine & Craniosacral Therapy
http://www.specialyoga.com/ ~ Yoga for the Special Child
http://www.flinthillstrc.com/ ~ Flint Hills Therapeutic Riding Center ~ Hippotherapy
Craniosacral therapy ~ Upledger Institute
Hydrotherapy
Meditation
HELPFUL LINKS:
Kiefer Pediatric Flotation Collar ~ For Hydrotherapy
http://www.waterwaybabies.com/ ~ WaterWayBabies System for Hydrotherapy
http://www.andreamcdowell.com/Beanie/archives/being_small/ ~ One of THE BEST blogs I've ever read regarding having a child with dwarfism. Scroll down to the July 1, 2005 entry entitled "Helpful Hints to the Parents of the Averagely Sized," written by my friend, Andrea McDowell. I can SO relate. xo
http://www.tubietoppers.com/ ~ G-tubes with style! WONDERFUL, well-made, high quality, super absorbent, DARLING cloth g-tube pads made by my friend, Kate!
http://www.vitamix.com/ ~ Vitamix Blenders ~ Contact Sandy Ventimiglia for more information on attaining a refurbished Vitamix blender (which has a full 7-year warranty!) for your child with special needs. THIS IS THE BEST BLENDER ON THE MARKET (in my opinion!) and CRUCIAL for a child fed a blenderized diet. Information on this AWESOME deal from Sandy/Vitamix is as follows:
We are pleased to offer a special discount on a reconditioned Vita-Mix 5200. The special price is $299.25 + applicable sales tax, US pricing.
To qualify for the special discounted price, we require a note or verification from the individuals Doctor, Nurse, Occupational Therapist, Dietitian (or other health-care provider). The notification can be sent to my attention (via FAX 440-235-3726 or US Mail – 8615 Usher Rd., Cleveland, OH 44138)
To be considered for a machine to be donated, we will need to have additional documents filled out.
Please contact me for further assistance. I am available Monday – Friday 8 a.m. to 5 p.m. EST at 1-800-848-2649 ext. 2501 or by email at sventimiglia@vitamix.com.
http://www.mealtimenotions.com/HomemadeBlendedFormulaHandbook.htm ~ Blended Formula Handbook by Marsha Dunn Klein, MEd, OTR/L and Suzanne Evans Morris, PhD, CCC-SLP ~ invaluable resource for using a blenderized diet with your g-tube fed child!
http://www.benik.com/ ~ Resource for soft hand splints (we use this to help our girls keep their thumbs out of their fists)
http://oreganicthrifty.blogspot.com/2009/05/goat-milk-formula-recipe.html ~ Goat milk formula recipe which is often helpful for babies who cannot tolerate anything else. Check with a doctor first before using.
http://www.realmilk.com/where.html -- Website to help locate local sources of raw cow & goat milk
http://www.fruiteze.com/ ~ Resource for natural way of helping constipation
http://www.calmnatural.com/ ~ Resource for natural way of helping constipation ~ there is a Kids Calm available or we opt for the plain Calm (no extra additives) and adjust dosage based on weight.
http://www.countrylifevitamins.com/productdetails.php?product_id=66 ~ The B-12/Folic Acid supplement we use with Lola. This is necessary if using primarily a goat's milk formula or severe anemia can result. We crush with two spoons and spoon powder under her tongue for maximum absorption!
http://www.earthmamaangelbaby.com/ ~ All-natural, organic, toxin-free baby products ~ THE BEST!
http://www.llli.org/ ~ La Leche League International ~ breastfeeding information galore!
http://www.kellymom.com/ ~ WONDERFUL breastfeeding/parenting website
http://www.westonaprice.org/ ~ Great nutritional info for the entire family
http://www.mercola.com/ ~ My favorite natural health website!
