Below is a list of resources, alternative treatments/therapies, and helpful links we've used over the years...

INFORMATIONAL WEBSITES:  ~  Head Circumference Calculator (oh, and PLEASE let's not discuss how my girls' heads are -13.1 S.D. and -16.7 S.D. below the norm... DAMNNNNN.)  ~  Foundation for Children with Microcephaly (FCM)  ~  Information about Cortical Visual Impairment (CVI)  ~  Information about Spastic Quadriplegia Cerebral Palsy  ~  Information about Microcephaly with Simplified Gyral patterns (MSG)

ALTERNATIVE TREATMENT/THERAPIES:  ~  Holistic medicine at its finest!  ~  Yoga for the Special Child  ~  Flint Hills Therapeutic Riding Center ~ Hippotherapy

Craniosacral Therapy  ~  Upledger Institute




Kiefer Pediatric Flotation Collar  ~  For Hydrotherapy  ~  WaterWayBabies System for Hydrotherapy  ~  One of THE BEST blogs I've ever read regarding having a child with dwarfism.  Scroll down to the July 1, 2005 entry entitled "Helpful Hints to the Parents of the Averagely Sized," written by my friend, Andrea McDowell.  I can SO relate. xo  ~  G-tubes with style!  WONDERFUL, well-made, high quality, super absorbent, DARLING cloth g-tube pads made by my friend, Kate!  ~  Vitamix Blenders ~ Contact Sandy Ventimiglia for more information on attaining a refurbished Vitamix blender (which has a full 7-year warranty!) for your child with special needs.  THIS IS THE BEST BLENDER ON THE MARKET (in my opinion!) and CRUCIAL for a child fed a blenderized diet.  Information on this AWESOME deal from Sandy/Vitamix is as follows:

We are pleased to offer a special discount on a reconditioned Vita-Mix 5200.  The special price is $299.25 + applicable sales tax, US pricing. 
To qualify for the special discounted price, we require a note or verification from the individuals Doctor, Nurse, Occupational Therapist, Dietitian (or other health-care provider).  The notification can be sent to my attention (via FAX 440-235-3726 or US Mail – 8615 Usher Rd., Cleveland, OH 44138)
To be considered for a machine to be donated, we will need to have additional  documents filled out.
Please contact me for further assistance.  I am available Monday – Friday 8 a.m. to 5 p.m. EST at 1-800-848-2649 ext. 2501 or by email at ~  Blended Formula Handbook by Marsha Dunn Klein, MEd, OTR/L and Suzanne Evans Morris, PhD, CCC-SLP ~ invaluable resource for using a blenderized diet with your g-tube fed child!  ~  Resource for soft hand splints (we use this to help our girls keep their thumbs out of their fists)  ~  Goat milk formula recipe which is often helpful for babies who cannot tolerate anything else.  Check with a doctor first before using. -- Website to help locate local sources of raw cow & goat milk  ~  Resource for natural way of helping constipation  ~  Resource for natural way of helping constipation ~ there is a Kids Calm available or we opt for the plain Calm (no extra additives) and adjust dosage based on weight.

Max B-ND  ~  This is the Probiotic-Fermented B Vitamin supplement we use with both Claire & Lola.  This is necessary if using primarily a goat's milk formula, as severe anemia can result.  It is a liquid, so we add it to Lola's bottles & put into Claire's g-tube.  ~  Earth Mama Angel Baby ~ All-natural, organic, toxin-free baby products ~ THE BEST!!!  ~  The Honest Co. ~ Stylish, non-toxic & high-performance products.  We buy these safe, all-natural diapers, wipes & baby shampoo here & they are delivered right to our door!  ~  La Leche League International ~ breastfeeding information galore!  I used this website to find a local LLL group and specifically, a leader who specialized in helping babies with special needs learn to nurse properly.  This leader was a godsend in my life (Lorna, I mean you!).  ~  WONDERFUL breastfeeding/parenting website  ~  Great nutritional info for the entire family  ~  My favorite natural health website!  ~  Make-A-Wish  ~  This fabulous organization grant the wishes of children with life-threatening medical conditions to enrich the human experience with hope, strength and joy.  ~  Resource for wheelchairs as well as the double wheelchair (Ottobock Kimba Tandem) we have for our girls.

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