Showing posts with label thankful. Show all posts
Showing posts with label thankful. Show all posts

Thursday, January 28, 2016

Thankful Thursday ~ BBC Radio

Yesterday I was interviewed by Julian Marshall of BBC Radio regarding microcephaly and the Zika virus, a mosquito-borne virus which is believed to be causing microcephaly in newborns whose mothers were infected by this virus while pregnant. I was honored & thankful to discuss our experience with microcephaly, and I hope that maybe, in some small way, my testimony can help new mothers whose babies were diagnosed with microcephaly to feel less alone & afraid. I certainly don't have all of the answers regarding this diagnosis, but I want to help set their minds at ease however I can.

It is sad to me that microcephaly is being vilified in the media due to Zika, and I hope that the general public realizes that though this diagnosis would not be something I would have chosen, I am NO LESS BLESSED by having two daughters with this condition than if they'd been born typical. I am just as proud of my girls as I am of our neurotypical son, Cal.

CLICK HERE to listen to my radio interview from yesterday!  As of now, I am being told it may only be active for another five days, though I hope to be able to download an mp3 of it at some point so I can share that here as well.

1.20.16 ~  Claire, Cal, & Lola celebrating the #DayOfAcceptance for #3ELove

xo

Thursday, September 05, 2013

Thankful Thursday


This summer quite possibly might have been one of our busiest on record.  We have traveled multiple times each month, which basically means I spent most of my time packing & unpacking (or refusing to unpack since I'm just gonna have to pack that shit again in a few days so I struggle through working out of suitcases in every room of the house & bitching because of it) and doing laundry.  Yep, I'm back, bitchezzzz.  Run-on sentences and all.  I am going to try to make a conscious effort to post more often.  I know, I know... I've said this before.  And I think I've figured out why I haven't been able to deliver on this promise.  

Perfectionism.

I don't know why, but in my head, it's like each & every post has to be off-the-charts moving/f'ing hilarious/touching/uplifting/full of messages about life & how we cope & find our joy & blah blah blah.  I don't know... I don't want to disappoint myself, not do my family justice, bore my readers, talk about the same stuff over & over, etc.  Pretty sure I need to get over it/myself/these feelings & just fucking WRITE.  I always feel so happy & fulfilled when I do.  So if you see me bein' all absent & shit, remind me of this, please.  You guys rock so hard.

(And WTF is up with my potty mouth?!?!?  It's like I've got 1.5 months worth of obscenities all pent up, waiting to burst out & burn through your retinas.  And for this, I apologize.  Sort of.  But not really.  :)

I'm thinking I should do a Thankful Thursday post every week because God knows I have SO much to be thankful for, and I would far rather focus on that than anything else.

This Thursday, I am thankful for those of you who choose to put up with my profanity  love me despite my stories about sharting  follow The Hooligan 5.  I wanted to give a shout-out & a great big thank you to a few special people today whose incredible generosity touched my heart greatly.

First off, I was elated to see that Lauren P. from Cali sent me five absolutely friggin' awesome g-tube pads for Claire. Skulls + pink bows + sparkle = badass perfection! Claire's been rockin' them in honor of her homegirl, Kendall (Lauren's daughter who also has a g-tube) & her twin sister, Khloe.  Much love & thanks from me and my "Mimi!"




The same day I received the g-tube pads, an anonymous reader sent me following handwritten note:

Made.  My.  Day.
THANK YOU for your kindness.  It really means SO MUCH.

During the same time frame, another reader (Julie F. from WI, you know who you are!!!) contacted me about crocheting some hats for our girls. I have a bit of a hat obsession which is complicated a WEE BIT by the fact that my girls have very tiny, irregular-shaped heads.  Julie was sweet enough to ask me specific measurements & custom make hats to fit both girls.  She also threw in matching custom-sized, crocheted leg warmers (pics to come this fall!) & handmade hair bows. Our girls feel so special & spoiled!!!  Please check out Julie's Facebook Page when you get a chance -- she is so talented & awesome to work with. Prepare to drool over her DARLING hats below...






I am obsessed with this picture of Claire... she looks SO twelve & SOOO beautiful.
SUPER embarrassed she needs a chin strap... ha!







Julie, you have outdone yourself, and we SO appreciate you taking the time to make these precious gifts for Claire & Lola.  THANK YOU.  The girlies send you big, wet, slobbery kisses!!!


"I would maintain that thanks are the highest form of thought, and that gratitude is happiness doubled by wonder."
~ Gilbert K. Chesterton


I am so very grateful for the love & support I get from everyone who follows our family and this blog.  I cannot thank you enough for the kind words, thoughtful messages, and all the positive mojo you send our way on a daily basis.  

xo
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